Reply To: Rare situation of severe GBS case

July 24, 2016 at 9:21 am

Thank you all for the feedback, it means a lot.

Jamie- Paul is 25, so close in age to you. He does have PT everyday weekday, and I do range of motion on the weekends with him when the PT isn’t there to help keep things from getting stiff. Glad to hear you are improving and I expect the same for him. We’re just going to keep doing what we’re doing and try to be patient that this all just takes time and we’re grateful he’s alive after everything he has been through.

GH- thanks for your comments as well. He had 7 rounds of PE and then IVIG but said they wouldn’t see a benefit in doing more this far along, just need to give the nerves time to regenerate.

Eric- appreciate your insight as well. We aren’t giving up hope and it’s great to hear all of your positivity.

Thanks again to you all, this is very helpful and encouraging for us.