Reply To: Axonal Guillan Barre (AMAN)

June 13, 2016 at 4:07 pm

Hi again, Jennifer (and other friends!):
Dr. A really is very, very good! He is very thorough and I learned so much more from him about my condition. It is definitely an Axonal Neuropathy. He ordered a nerve biopsy and referred me to the neuro muscular group. I’m not sure which Dr. to request, but it seems that they are all very good at Northwestern.

He explained quite a bit about IVIG and warned me that there are more risks for older patients like me; I’m in my late sixties. So, now I need to find out if anyone out there has done well with IVIG at my age. My worry is that this is progressing quickly and it may plateau at some point (learned that today!), but it also might continue to cause more weakness.

BUT – thank you again. I feel I’m in the right place now for treatment.