Reply To: Negative Spinal Tap-Still CIDP?

May 29, 2016 at 2:28 pm

Thank you so much for all your replies! Not only are they incredibly helpful,but they give me hope and renewed energy to keep trying.

Charles, would you mind telling me what additional test results had to be sent. I’ve just started a leave of absence from work to work full time on getting my treatment! I couldn’t do both. I hope to get this settled soon and start on IVIG so I can get back to work. My neurologist set up an appointment for a second opinion with a neuromuscular specialist in California. We’re hoping that will be enough for my case. I’m so interested in your experience since you dealt with the same insurance with a negative lumbar puncture.