Reply To: Sensory CIDP?

December 28, 2015 at 9:25 pm

Well you have read this sites explanation of what CIDP does to your myelin and possible to your axons, right? The prognosis is fairly good if you are treated early and are young. Diametric of both those, does not have a reasonable prognosis unless…. You eat well, take real good care of the remaining muscles. If they are allowed to atrophy its not good. Normally your body will regrow the mylin and axons(?), it takes time. IF Your legs, arms show atrophy probably the other muscles are not so good also. You must exercise and try to get the muscles to at least be improving. If you don’t its down hill all the way. Then yes you will not feel like IVIG is helping. You’ve got to help yourself. I’m no Doctor or even a neophyte first aider but as an Engineer I know that if you don’t maintain the supports of your (what ever) it will not continue to preform as designed. My remaining years probably will not give me time to regrow all I’ve lost ,but I will be pushing my self to recover all the way.