Reply To: AMAN Varient 7 weeks on vent
I really am starting to believe that this dot org is a hoax. Seriously. My mother came down with GBS in April, I contacted this group for help in understanding the syndrome and everything behind it. I got one email response with the name of my area contact – who never contacted me. I’ve called this organization and left messages, I’ve emailed the local area rep and this organization and never heard anything. And here I am, 6/7 months later and I can’t even get one person to comment on my post? I go back and see how quickly others have responded – seriously. Who are you people? And what a cruel means of dealing and “helping” others. What a waste.