Reply To: Severe Tremor

October 28, 2015 at 7:16 pm

Thank you, thank you, thank you, a hundred times. I appreciate your responses so much. We’re all beginning to lose hope. She used to have a fighting spark in her eyes, but after nine months of unrelenting severe tremor (cannot feed herself, read a book, use a tablet or e-reader, hold a paintbrush – the things that she used to love to do), I can’t see the fighting spark in her eyes that has been there through each relapse since last January. This is such a cruel disease. Each time she would work so hard in PT to make some gains, only to have the rug ripped out from under her with each relapse. I’m afraid we’re losing her. She was not in great health before the CIDP and is not responding well to any of the traditional treatments. We’re hoping her doctor will agree to try Rituximab/Rituxin next.

Thank you again!