Reply To: Father with Axonal GBS- No change after 3+ months

October 22, 2015 at 3:15 pm

Plasma exchange seemed to help me when IvIg did little, but it is not possible to say. With this disorder, doctors try a treatment and hope for the best. If the doctors don’t know it’s because medical science doesn’t know.

In any case, they wouldn’t start PE until the pneumonia is cured. That is absolutely the first priority. I also had pneumonia and my PE was started after it was defeated or very nearly so.

Isn’t it just two and a half months, not four? I was a quadraplegic for few weeks, but I now walk without assistive devices. I was 63 when I developed GBS (or something similar), and was able to walk without a cane after about a year and a half. Recovery from complete paralysis is possible, but with axonal nerve damage there is likely to be some permanent impairment.

Frequent visits and support are important. Keep it up.