Reply To: Axonal Guillan Barre (AMAN)

October 1, 2015 at 6:26 pm

Hey Chickenunderwear!

Thanks for reaching out. We are an exceedingly rare group. I have a top-notch neurologist at Northwestern Memorial Hospital, and I’m his first ever AMAN patient. One thing you should know…..IVIG infusions are working for me! My initial damage hasn’t healed, but it’s preventing the progressive damage that I had until I started monthly treatments. December will mark my 3 year “anniversary” and I’m holding steady.

Let me know if you need any advice.