Reply To: Dealing with family and friends

August 11, 2015 at 11:53 pm

Hello Dlockard,

I too have had difficulties explaining my illness to some of my friends and family and especially to my mother. Like JK wrote above, explain again and again. I went as far as to write a 12 page essay to my mother explaining my illness so she could have more information about it and the reason why I’m no the person I was 2 years ago and she still does not understand.

I wish you the best of luck and keep explaining and if you lose friends because they don’t understand like I did they we not good friends to begin with. Keep trying to explain, I hope people listen, maybe write an essay so they have some literature in their hands to read so they not only hear what you are saying but they can see on paper what you are talking about.

Best of luck,