Reply To: Remission

Good Morning,

Anyone ever been told the 5 IVIG treatments that worked the last 5 relapses are now reduced to three? (CIPD PATIENT diagnosed twice once AHN then again by UPMC the insurance is UPMC.)
A month ago this happened. My friend has been lying in a SNF for a month being told that if she doesn’t progress she will have to go to private pay.

Yesterday she was admitted to the ER with blood clots in lungs and legs. In ICU after a battle to get the SNF to send her. She is on a heparin drip.

Seems to be conflicting treatment plans between the UPMC doctor’s and her Nurologist that was treating her with great success prior and continues to want to do so.

If anyone has herd of anything like this please share.

Thank you – Lisa