Reply To: Diet, Exercise and GBS

June 25, 2015 at 2:17 pm

Cyclosporine: I have been dealing with CIDP for about eight years. I had one five day treatment with IVIG. I thought it helped but got a life threatening complication from the drug. No more IVIG.

Prednisone was a disaster for me and did no good.

Plasmafarisis did not help.

Chemo with cytokines for six months did not help.

I heard about cyclosporine on this forum. I was on it for a couple of years and I got a lot better. I stopped cyclosporine for a year or so and after a virus my condition has deteriorate significantly. I’m back on cyclosporine, probably should not have stopped, and hopping for improve the again.

PS when I overdo exercise I’m a basket case for three or four days.