Reply To: CIDP again?

You know I’m one of your original members way back. This organization had barely started with Mrs BENSON (?). My wife called her sometime it the 80-85 time period. We had one hard time getting the Spinner set up,a place,a Doctor (3) and a billing procedure. My Neuro group had not done this, my Kidney Dr had not done this for GBS so we were at square 1, with Mayo Clinic saying try Plasma Pheriosios. The only Dr’s who had half-way participated in this was the Vas-Cath guy. I’ve had three vas-caths get infected and boy is that trouble. Ive even been through at least 2 forum boards going down, with all old information lost. I used to converse with another GBS’er a Dr in England. I dont remember his name but he responded to everybody’s e-mail’s. I did a little reattach concerning the Neuro changes causing double vision (Some nerve group in the brain stem. I also dug out instances where the blood pressure control was affected and several other auto-control functions.

This board seems dead, maybe there are other boards with a little more traffic.