Reply To: New here – possible CIPD?

Treacle? I had to look that one up. Must be a UK thing. The UK has a support group.

http://www.gaincharity.org.uk/

CIDP has specific features that an ‘unaware’ EMG/NCV tester may not recognize. And, it is unlikely a patient would understand them either. This is particularly true in the less common variations. In my case “they” missed (at least) the “Absent or prolonged F wave latencies” described by Dr. Lewis. And, nobody mentioned the fasciculations (muscle twitching) for years. Wikipedia says: “Fasciculations arise as a result of spontaneous depolarization of a lower motor neuron leading to the synchronous contraction of all the skeletal muscle fibers within a single motor unit.”

The muscles will look as if they are shaking. These are not major cramps. They are little twitches that do not go away over time.

Dr. Lewis discusses EMG/NCV test findings here: http://emedicine.medscape.com/article/1172965-workup#a0721

In addition, there may other blood, lab, and even genetic testing to be done to exclude other conditions.

I suggest, and did do it myself, finding a neuromuscular specialist. In my case, it was at one of the Center’s of Excellence recommended elsewhere on this website.

Please study the entire Dr Lewis report. It is over 9 pages long and includes a page on differential diagnoses.