Reply To: Urgent. GBS misdiagnosis

I had organ involvement and vomiting with GBS. My lumbar puncture was normal but I was still diagnosed since I had symmetrical paralysis. I was in the hospital for 4 months as it progressed extremely slow even with IVIG. My liver failed, enzymes were in the thousands and biopsy was normal. My kidneys began to fail as well. I constantly vomited anything put into my stomach, even with a feeding tube running at the slowest possible rate. At one point my throat was so weak that I had aspirated the vomit into my lungs and went into cardiac arrest. They have no explanation for my rare symptoms to this day.

This was 5 years ago. I’m alive and well but still suffer from unknown GI issues. I also have had issues with my heart like afib, tachycardia & bradycardia, and orthostatic hypotension, which is common with autonomic issues. GBS is different for everyone, that I know for sure. Hope all is well. Xx