Reply To: Ability to Work with CIDP

January 18, 2015 at 2:30 am


Hi everyone,
Just recieved CIDP diagnosis Tues. I am(was?) a concert pianist, and have a studio load of 35 students. Had first IVG yesterday….want to be agressive. Was first told I might have ALS, and though this news is devestating, it looks better from where I am sitting….at least there are treatments to start with. Probably had it for ten years, but due to asthma, had been on high doses of Prednisone for 8 years. Symptoms started emerging after a year or so after not being prednisone dependent. This is the first time I have ever written or joined a forum. Just did not want to waste time. Trying to keep the fear and anxiety at bay. I am 56, and married to a professional cellist. Don’t know for sure how life will be affected. Reading your posts helped me. I feel very alone in Montana with this disorder. Any suggestions to the newby?
Thanks for listening, and hang tough.