Reply To: MFS & Blood Pressure

November 6, 2014 at 8:09 pm

Thank you again Jim. Your story is most helpful for me, but I wince at the challenges you continue to deal with, but honor the grace in your repoire.

That information is very timely for me, as I am visiting the neurologist tomorrow am, to discuss this very scenario and plan to bring you testament with me.

I live in S. Dakota, Rapid City…nearest Center of Excellence is apparently the Mayo Clinic in Minnesota…Insurance does not go across state lines. So, hopefully the local neurologist will be capable.

Yes, I had the spinal tap with high protein and also some reflex tests. I have not had the nerve conduction velocity test. Another reason your post may prove helpful. I’ll keep things informed here.

Thanks again!