Reply To: Recently diagnosed with CIDP
Your disease progression seems very rapid. Yet, some IVIG seemed to help. Consider attempting to get more IVIG more often.
You stated “… because at this point I know almost nothing, as do the medical professionals involved in my case. Thanks~.”
My advice is to find Medical Professionals who know more than almost nothing. On the main GBS-CIDP page click on CIDP, then use the drop down menu to select and read all the available information there. At a minimum you could look for a neuromuscular CIDP Specialist.
Do not be complacent, take charge, do not sit idly by. It is likely your condition is not sitting idly by.