Reply To: Recently diagnosed with CIDP

October 31, 2014 at 1:35 pm

Your disease progression seems very rapid. Yet, some IVIG seemed to help. Consider attempting to get more IVIG more often.

You stated “… because at this point I know almost nothing, as do the medical professionals involved in my case. Thanks~.”

My advice is to find Medical Professionals who know more than almost nothing. On the main GBS-CIDP page click on CIDP, then use the drop down menu to select and read all the available information there. At a minimum you could look for a neuromuscular CIDP Specialist.

Do not be complacent, take charge, do not sit idly by. It is likely your condition is not sitting idly by.