Reply To: Diagnosis problems

Diagnosis of neuropathy is often difficult, but usually not so difficult as in your case. The spinal fluid test will usually identify it as either GBS or CIDP, but not always. The test can be negative if taken too early, then positive later, so is sometimes repeated. Was your test taken early? Was it completely normal or just too close to normal to be a definite positive?

When a diagnosis is inconclusive, sometimes a nerve biopsy will be done. This is an invasive procedure, so is usually not done if not strictly necessary. Have you had this?

Perhaps you should go to a Center of Excellence for diagnosis, if you are able. Where are you located?