Reply To: How long after onset did you begin to actually lose strength, not just weakness?

You can’t apply someone else’s experience to predict your own, because there is so much variation. I lost leg strength fairly quickly. About a month after onset I couldn’t stand. I was diagnosed on the basis of my presentation alone, and this was supported shortly afterward by a spinal fluid test, so treatment was begun. It was several weeks before I had the NCV test and several more before I had the EMG. These were just to characterize the disorder, I suppose.