Reply To: Neuropathy… still?
In answer to your question- I was dx 5 years ago at age 41. Originally dx with GBS , hospitalized , paralyzed from trunk down- good response to IVIG 5 day loading dose – relapsed about 8 weeks later and back on loading dose ivig- after another relapse, re- classified to CIDP and have been on maintenance ivig currently every 10 days and also in Imuran ( azothioprine) for CIDP- my strength is improved but not normal – I am able to walk without a cane but not long distances I have a wheelchair if I have to walk long distances. I have some tingling , numbness and some nerve pain but take no meds for it as it is not the most prominent symptom for me- uggs are pretty wide and you can size up if you need they usually tell you to get a size smaller as it is natural shearling lining and compresses with time- I have a lot of issues with Raynauds so for me they are a lifesaver – I hope this helps and hang in there !