Ubbietom

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  • Ubbietom
    June 25, 2015 at 2:17 pm

    Cyclosporine: I have been dealing with CIDP for about eight years. I had one five day treatment with IVIG. I thought it helped but got a life threatening complication from the drug. No more IVIG.

    Prednisone was a disaster for me and did no good.

    Plasmafarisis did not help.

    Chemo with cytokines for six months did not help.

    I heard about cyclosporine on this forum. I was on it for a couple of years and I got a lot better. I stopped cyclosporine for a year or so and after a virus my condition has deteriorate significantly. I’m back on cyclosporine, probably should not have stopped, and hopping for improve the again.

    PS when I overdo exercise I’m a basket case for three or four days.

    Ubbietom

    Ubbietom
    June 25, 2015 at 1:50 pm

    My acupuncturist who is also a neurologist recommends this protocal every three months.
    Vitamin B12 2500mcg sublingual, one a day for 14 days.

    Vitamin B6. 200 mg. one dose every other day for one month. Start taking on an even day to help keep track.

    Vitamin B1. 250 mg. one every other day.
    For one month. Take on odd days.

    After finishing 14 days of B12 start taking: niacinamide 500mg.
    One tablet twice a day for 10 days.
    One tablet once a day, after meals, for 20 days.

    Repeat in 3 monthe

    These vitamins are inexpensive and I have more faith in the doctor who recommended the regimine who has no financial incentive.

    Ubbietom