Italianguy

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  • Italianguy
    September 30, 2015 at 7:49 pm

    Hi Daurkin,
    I was diagnosed with GBS mid July of 2015. IVIG treatments are usually covered by insurance and they are expensive if you have to pay for them. You can google the cost to see. IVIG is the usual treatment. I had 7 treatments of IVIG while in the hospital. After coming home the neuropathy in my legs and feet where getting better and then about a month ago it started coming back working it way up my legs to my knees. My neurologist ordered a new series of IVIG treatments by outpatient. I receive 5 infusions of IVIG everyday for a week (5 treatments) and then again every month for another 5 months.
    I hope this helps answer your question.
    Kind regards,
    Mike

    Italianguy
    September 30, 2015 at 7:41 pm

    I was diagnosed in mid July 2015. I also feel like I am walking on pebbles. It’s painful. The neuropathy in my feet almost went away then about a month ago it started working it way back up my feet and up to my knees. I’m concerned and don’t know if it’s “normal” for symptoms to come and go.

    Italianguy
    September 12, 2015 at 2:03 pm

    Hi Rose. I have not had my legs swell and my GBS started in the middle of July. I am certainly no expert and again swelling is not a symptom that I have had. I wish you the best in your recovery and have faith that your recovery will happen and look forward to future posts on your progress. God bless you and your recovery Rose.
    Mike

    Italianguy
    September 12, 2015 at 11:54 am

    Hi Rose. I was diagnosed with GBS in July. It’s been a very difficult time but it sounds like your symptoms are quite normal and nothing to be overly alarmed about. My feet feel almost exactly the way yours feel it feels like I’m walking on marbles. My legs were getting better and then the nueropothy was leaving my legs and went down to my feet and then it reversed and came back up to my knees. GBS syndrome can really mess with your head because it is frightening it’s been a scary experience for all of us. Hang in there and know you’re not alone.
    Mike

    Italianguy
    September 11, 2015 at 2:39 pm

    Thank you all for your posts. I was happy at how I was progressing and then a few weeks ago the neuropothy began to creep up my legs and is now up to my knees. Hoping it reverses soon.

    Bless you all in your recovery.

    Mike

    Italianguy
    August 28, 2015 at 7:54 pm

    Hi Angel,
    Yes it does help. I had 7 treatments in the hospital but nothing has been said about having anymore so I’ll bring it up to my doctor on my visit next week.
    I don’t know much about GBS but it sure has kicked my butt. I really hope they can put a finger on what you have so the course of treatments can be effective.
    Thank you for sharing this information with me.
    Sincerely,
    Mike

    Italianguy
    August 28, 2015 at 1:53 pm

    You described my band exactly! Thank you for sharing. The “boa constrictor” at times is incredibly severe. Your post has given me hope that I will might not have to suffer the rest of my life with it.

    Thank you,

    Mike

    Italianguy
    August 21, 2015 at 9:42 pm

    Hi Nolan,

    Thank you for sharing your story. I know you can feel vulnerable sharing such an emotional, trying and humbling experience online with “strangers.” It is strengthening to hear from others. I was just diagnosed July 10th 2015. I will share my story as you did in the near future.

    May the Lord’s healing hand descend upon you and bless you and your family. I have a feeling as I am writing this to say that you will recover to a very positive level or activity as you work hard.

    Bless you my friend as you recover. I can honestly say “I think I know what you are going through.”

    Kindest regards,
    Mike

    Italianguy
    August 21, 2015 at 9:30 pm

    Hi Jim,

    Thank you for your response. This torso pain is bad. Sometimes interferes with my rehab exercises and my walking. Glad to know that yours improved as it gives me hope for a similar outcome.

    Glad I stumbled in here and I look forward to being able to share my entire story sometime and perhaps be a positive influence on someone else here.

    Sincerely,
    Mike