Recovery almost worse than attack

    • August 24, 2025 at 4:45 am

      Hi I was diagnosed with recurrent GBS last month. A “mild attack” which means that I could still walk (although wobbly). Received Ivig and am actually finding that the recovery is harder than the attack. During the attack I had rising paresthesia both sides and then quadriceps weakness. But a month post attack I feel muscle pain with even minor use, more paresthesia and other weird nerve sensations, especially when I’m stressed or have done some walking. I know many of you have experienced much worse (although I’ve had multiple attacks – not CIDP) but just wondering if anyone else found the recovery more difficult than the attack. I don’t know how I’m going to be able to do the pt exercises.