CHILLS anyone?????

Yes, Jean, I get these a lot. Have you taken your temperature? When I did, my temperature was like a degree lower, 97. It feels like the chills you get when you get the flu.

[QUOTE=jeanbell1]Does anyone else experience chills occassionally? Since the beginning of my CIDP symptoms, I have gotten chills every now and then.[/QUOTE]

I have CIDP and cold temperatures are a problem for me. I discovered that I felt much better if I’m warm. However, living in Wisconsin during the winters created a problem so I warm up in a hot tub every night before retiring. During the day, I found that Lyrica manages my daily symptoms.

I’ve had bouts of shivering when either too cold or too hot. My Neuro told me mine is from my CIDP affecting my body’s temperature thermostat. It is so weird! When I become too hot (hot day) I’ll shiver just the same as if I am too cold!
Sometimes when I feel unwell from my CIDP (inflammation happening) I’ll feel a bit “chilled” as well.

Good luck!
Kazza

Oh my me too. I get chills on colder days but the same can happen on hot days. I live in Minnesota so cold days can get cold. I sleepith a comforter and another blanket lighter folded over. There will be times when like in a grocery store that I will break out in a sweat. Like others when I take my temp it will be 97 degrees or even a 96 degrees. My nero told me to take vit B1 to help regulate my temp. Seems to help a little.
Just one more thing we have in common 🙂

I go through the chills and sweats frequently. I think it is a combination of a screwed up sensory input from the CIDP and the meds I take.

You are right, just another one of the happy pleasures we get to have with our CIDP.

105 on the desert today – expected to go up to 107, and yes, I am sitting here in my warm fuzzy robe, with my fuzzy socks on. Last year both were put away until fall, but if I don’t sleep in my socks my feet get so cold the pain wakes me up, the cramping is awful and I am cold all over. I will go outside and sit in the sun every morning, just soaking up sun. I am so tired of being so cold, when all the rest of the world is warm. My thermostat is messed up, too.

[QUOTE=jeanbell1]Does anyone else experience chills occassionally? Since the beginning of my CIDP symptoms, I have gotten chills every now and then.[/QUOTE]

I was diagnosed with CIDP a year and a half ago, and had no pain and no
chills, at first. Now, I am experiencing chills, that make me feel very cold,
no matter how warm the room is, and no matter how much clothing I have
on. It sometimes lasts a short time, and at night, I have had it last for
hours. I thought, it might be an allergic reaction to something in the air,
and have taken Nyquil at night, with good results. I also am having pain
now, that doesn’t seem to have any cause, and I have had to take pain
medicine regularly for pain in my right upper thigh. These symptoms have
started, since my last neurologist appointment, so I haven’t been able to
ask my doctor, if they are related to the CIDP.

I think the chills could be related to the autonomic nervous system, which regulates body temp.

Another one here, I am always cold. Most of the summer I sleep with a blanket on. I always wear socks to bed, or my feet get so cold I can’t sleep.

Thank goodness for a goose down conforter.At night watching TV in my chair I sometimes have to use it. When I go to the doctor and they take my temporture It seems it runs 97 +/-. If the fan is on the air flow seems to make it worst.