thank you for all your wonderful responses

i would love to hear from even more of you…

from almost the beginning, doctors and then even us, seem to downplay the importance of the cause– kind of the usual shrug followed by, “it’s autoimmune,” and “we think some pathogen enters the body initiating molecular mimicry,” or “it’s idiopathic.” so the subject never gets explored. and i think a lot of us wonder– i know i have– and by the great amount of responses i’ve gotten, i imagine the subject is of interest to you too…

i am strongly considering writing a book. at this point i am only in the beginning stages of the idea and outline– but the question of why WE think we got sick is of significant interest to me.

certainly i have much yet to do medically for myself before i can throw myself into a book project. but just to share with you my basic idea– i would want tell my story while incorporating interviews by others who are willing. i believe the diversity of our stories would broaden awareness of how complex and diversified our presentations are. perhaps, it may help…

so, for now, i ask with humility and gratitude, for everyone to come forward, if you feel comfortable doing so, and answering the question of this thread: why do [U]you[/U] think you got cidp/gbs?

thank you so very much,
alice

if you prefer privacy, pm me…