I had symptoms of eye problems….

about 3 months before my own CIDP onset. After Onset? I had what best could be described as ‘ground fog’ in front of my eyes when driving or at home! Saw a Neuro-Opth who’d scratched his head and had decided I’d had been having ‘non-aura’ migraines. I also wear eyeglasses, and my lenses changed dramatically during this period!
Five years ago, visual disturbances WERE reported as symptoms for CIDP? These days tho? NOT found as a symptom. Go figger. But? DO BE CAREFUL ABOUT your EYEs!!!!!!!!!!!!! Especially when you’ve sensory neuropathy symptoms. Your eyes are much more important now than ever! It’s scary enough to lose ONE sense, let alone others in the process to boot?
As for a connection to infusions? Do you KNOW what your rates were? Dose and how fast it was done? IT is possible that if you were given your dose too fast? It could create problems with other things, such as your eyes. Speak to your prescribing neuro about this issue…call and leave a message and keep following UP! While IVIG is a good thing? Too much of the good thing too fast can be dangerous! Put some of your questions/concerns down on paper …. in an organized manner if you can? THINK! Did your eyes start to muzz up when they upped the infusion towards the end or the like? That is what had caused my vision issues I think…that the very last ‘bit’ was pumped into me too fast at the hospital. I now have it done at home and we’ve found a way to get the juice into me faster, but w/far less side effects. A lot of it was trial and error tho.
Do not be afraid to ask your neuro some hard questions about your problem! I suspect that you won’t get much in answers? But maybe, just maybe? HE [the neuro] will investigate even a little bit? And that could/should go far!
Sure hope this helps some! ASK QUESTIONS! Do NOT take ‘don’t know’ for an answer? Because they do know, tho your doc mite not? HE’s got the resources to find out! SO keep asking! Please….