attack

Anonymous
September 4, 2007 at 12:59 pm

Hello Monica,
I’m not a doctor, so this is just my opinion and I have both sensory and motor so my needs were different, but I think you should talk to your doctor about how to space the IVIG’s. Also talk to him/her about whether you should try a maintenance. Many of us need to stay on a maintenance series in order to keep progression under control, rather then an as needed basis. Now that you are having problems three months later, see what your doctor says about trying the IVIG’s every two months, until you find the space of time that keeps you feeling good.

Attack

Anonymous
September 3, 2007 at 11:36 pm

Hello Monica,
I was wondering about the way your IVIG’s were scheduled too. Was the infusion you had three months ago the first series of IVIG’s? Or have you been getting them like that for six months to a year? Some of us can’t go three months in-between infusions, that’s why you might be having problems now. Talk to your doctor and find out about having them scheduled closer together. When I was on IVIG’s, I did well with them every other week.