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July 9, 2011 at 11:39 pm #9814
Can some you describe some of the symptoms that you get with a CIDP relapse? The reason I am asking because I realized in the past when I was having relapse that some of my symptoms my Neurologist said was not cause by CIDP but I read people stories here and I realized she is wrong. I am trying to get a second opinion from another Neurologist but it may take a long time before I can see him because he is a busy DR. But I am manage to contact him through a email and I think I might not have to wait as long as I originally thought.
For me I had signs of severe Tendinitis in 2007 which I was told was not due to CIDP or hearing lost which is partly not due to CIDP but made worse by my CIDP. Feeling cold to the bones in the winter or early spring when you still have to heat your house tingling numbness in fingers vibration in my feet and legs more muscle pain in my back and legs and arms. I have had back injuries in the past but this pain I get with a relapse is muscle pain when having to stretch my arms and back at work compared to not having that when I am in remission. I have some signs of a relapse but not as bad as before. Tired more easily. My last testing in April I think was flawed and the student Technician who was being supervised was having a hard time. I was told the computer wasn’t reading the signals properly or something like that so she made the student go over some areas 4 to 5 times to get the better reading.
Now I also feel the literature on CIDP relapse doesn’t explain enough about the symptoms. Like last year I was diagnose with a sleeping disorder and they noticed I have twitching in my legs not related to my sleep disorder and my Neurologist said it was not related to CIDP but while in Toronto for the Conference in April I found out it could possibly because of my CIDP. So if you people would not mind mentioning what symptoms you get with a relapse then I can compile a list and compare it with my symptoms and talk to my Current Neurologist about it and also mentioned it to the new Neurologist I am waiting to see.
Sorry for the long post
Thanks EveryoneJuly 10, 2011 at 4:37 pm #100295
I have great doctors but they read medical textbooks and it has limited information so usually the answer is no or I don’t know. The week that all my symptoms started I also started with ashma ,both my Neuroligist and pulmalogist said no relationship.I don’t believe them. As for cold feelings I keep an electric throw comfortable in my chair and the rest of the family will be sweating and I am under it to my nose. It is not so much the temperature as a celing fan with air movement. Hang in there and continue to educate the medical field.July 10, 2011 at 6:23 pm #100298
Thank you both I have some signs of a relapse but not as bad as I did in 2007 or 2009 but certain jobs at work I have a harder time to do then I did about 6 months ago. I just want to compile a list that I can compare with and then show the list to a DR who says that my symptoms are not from CIDP then I can say well then why do all these other CIDP patients have the same symptoms when they are in a relapse.
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