terri232

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  • terri232
    May 28, 2022 at 10:35 am

    I did get in touch with Miami U and sent all my records to them as requested. I had a televisit with a neurologist there who did come to the conclusion that if it was CIDP it was the mildest case he has ever known. He thought it was more peripheral neuropathy. He also told me to get the Covid vaccines as the risk of not having the vaccines were too high. I did and had no reactions whatsoever. Just wanted to update this post.

    terri232
    December 27, 2019 at 10:30 am

    So – I am POSITIVE that either the NJ Swine Flu vaccine OR the pneumonia vaccine or the combination of the two resulted in my diagnosis of CIDP. I received them both on the same day and soon after that started with pins and needles in one leg – that was the beginning.

    terri232
    August 26, 2018 at 10:19 am

    Well – I guess too much is better than too little!

    terri232
    August 24, 2018 at 1:06 pm

    Thanks for your prompt reply – I do take probiotics!

    terri232
    October 7, 2017 at 1:51 pm

    Here’s one more – I received a flu vaccine and a pneumonia vaccine on the same day and within a day or two, symptoms started presenting. This was in 1994 and I went through barrages of tests and treatments because CIDP was not a known problem and I was misdiagnosed as well. It is a very long story which I won’t go into (unless prodded!). I registered years ago with VAERS and was told at the time that my diagnosis was too old to receive any kind of compensation. I just fell upon this website and am trying to update myself on all the info.

    terri232
    October 7, 2017 at 1:45 pm

    I would NEVER get another Flu shot or a Pneumonia shot. I have made inquiry -even with the Government and they cannot give me a definitive yes or no – I would not take the chance. It is better not to aggravate my CIDP and I feel the chances of getting the flu is low. A definite nay!