I’m on my way to Baylor College of Medicine (BCM) Houston tomorrow for further Dx and testing tomorrow. Now I’m armed with all the knowledge and help you all have given me and that gives me confidence.

I’m trying to get set up with another neurologist there who specializes in Neural Muscular disorders.

My heartfelt thanks to you all,

Gary

Kithlyara, I also take sublingual B-12 4000-5000mcg each day. I mainly do this as I had also researched B-12 regiments and my B-12 injection regiment is not nearly as aggressive as “typical”.

Interestingly I was taking sublingual B-12 (1000mcg) daily prior to my symptoms appearing and diagnosis. I picked some up by accident (intending to get “B Complex” and started taking it for energy. I used to work out pretty hard every day.

I don’t know if the sublingual B-12 is helping or not. I am running my own test though. I already have my baseline with sublingual B-12 1000mcg (first and second blood tests). My next blood test will be with B-12 injections and sublingual 4000-5000mcg daily. I will then quit taking sublingual suppliments and see what my fourth blood test shows.

Sorry, I’m an engineer by education and sometimes I just can’t suppress it.

Thank you all for the B-12 discussion. I talked with my neurologist’s assistant yesterday and the gave me orders for another B-12 injection. I took it this morning.

Monday and yesterday were very rough days neurogically and physically.The foot drop, leg stiffness and motor control and numbness in my fingers were the most pronounced they have been. I have found that regular (daily) exercise is very important to my health. I can swim, use weight machines, use an elliptical machine, ride a bicycle (I have fall down a couple of times like the tricycle guy on Laugh-In when I stop and try to balance on one leg). You younger folks won’t understand that one.

If I don’t see marked improvement from this last B-12 injection, I’m going to insist on more B-12 and further diagnosis.

My Neurological Chiropractor here in Houston has given me a product called “Biofreeze” which seems to “wake up” my sensory nerves temporarily and really cools them down. By the way, my Neurological Chiropractor has spent much more time listening to me, researching, assessing my motor and sensory functions and knows my overall condition and the neuropathy progress than anyone. And she has spent much more time listening treating me (adjustments and physical therapy).

I highly recommend checking into neurological chiropractic. I found mine at their Certification board web site link: [url]http://www.acnb.org/[/url]

Thank you Kelly for the quick response.

I have had two blood tests to date that showed B-12 deficiency. The initial one was done at the same time as the EMG & nerve conduction on my initial visit to the neurologist. The EMG department diagnosis was CIDP based on the nerve conduction and velocity tests.

I have not had a spinal tap.

My neurologist was convinced that B-12 deficiency was THE problem after the second blood test confirmed the first results. (Of course he was also convinced that I had charca marie tooth based on my initial motor skills assessment). I guess he thinkgs the B-12 diagnosis is so conclusive that the spinal tap is unneccessary.

I was relieved with the B-12 deficiency diagnosis, but now I am questioning if it is indeed the whole picture.

I was initially in constant contact with my neurologist (they knew my phone number by heart), but they have a way of making you feel impatient and somewhat of a pest.

Thanks again for listening and responding.

Gary