Would anybody be interested in a GBS chat room.
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AnonymousFebruary 19, 2011 at 5:15 pm
Why would anyone destroy this forum–would it be because they posted something that might have gotten them into trouble, I wonder?
I was very upset about that because I had told a very detailed account of the events which led up to my GBS in Jan. 2005 and would loved to have referred to it in Jan 2011 when I got my second bout.Ray
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AnonymousFebruary 19, 2011 at 7:42 pm
Just so you know, it was not a forum member who brutally hacked our forum. If you want more info about what happened, try calling the number for GBS-CIDP and talk to an administrator. Taking down the chat room was to protect us. And of course you wouldn’t have known, I’m an old time member. I think this happened in 2006. My memory has been effected by CIDP.
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