What exactly is IVIG?

    • Anonymous
      November 5, 2008 at 12:25 pm

      It almost sounds like chemo the way it makes you sick. I am wondering if it would be worth trying. If I could walk again, yes. If I am still living with pain and unable to walk, maybe not. Right now I think I’m a little unsure and scared.

    • Anonymous
      November 5, 2008 at 3:48 pm

      Nope, IVIG is nothing like chemo. It is anti-bodies pooled from over 1,000 plasma donors. It makes some people sick because of the additives it is mixed with and also because it is very thick. (the consistancy is very similar to karo syrup) So it takes some work for the body to move it around. I personally love IVIG and would not have NEARLY the quality of life I have without it. I would say give it a try. I do not have any adverse reactions from my infusions. I am a little tired afterward but usually get them at work and it does not interfere with my functioning at all. Good luck!

    • Anonymous
      November 5, 2008 at 3:51 pm

      Hi Patti –

      IVIG is made from the protein in human blood, called plasma. The plasma is cleaned by a multi step process & regulated by the federal government.

      There are side effects to every medication but I believe IVIG has the fewest side effects out of any of the treatments for CIDP. There are ways to curb the side effects of IVIG whereas with other meds if you get the side effects there’s really nothing you can do about it.

      Remember that we tend to only ask questions about worse case scenarios – we don’t always talk about the good. IVIG has been a life saver for my daughter. She can walk, run, jump & play just like any other kid. You could never tell just by looking at her that she has CIDP.

      There are children who get IVIG. Try to trust us mothers. We wouldn’t give it to our kids if it were so bad.

      IVIG works differently for everyone. I believe it is worth a try. If it doesn’t work for you then you move on to a combination therapy or another treatment.

      Hope that helps.

    • Anonymous
      November 5, 2008 at 6:26 pm

      Thank you all for the responses. I pray it’ll help.