What do you know?

    • Anonymous
      February 6, 2008 at 11:29 pm

      [COLOR=”Navy”][SIZE=”4″]Has anyone heard of Photopheresis and whether it has been used for CIDP with any results? It is apparently similar to plasma exchange but it uses a drug that is injected into the blood and then exposed to UVrays. It seems to be used mostly for lymphomas and skin related autoimmune conditions but has also been tried for other autoimmune diseases like MS. I am just curious as to what anyone here has knowledge of. Thanks.
      Linda[/SIZE][/COLOR]

    • Anonymous
      February 6, 2008 at 11:56 pm

      I used a form of photopheresis several years ago, My blood was very thick and “egg plant skin” in color. My own blood was run thru the light and back into my system. It was truly amazing the difference in just one treatment but I needed several more. There were no drugs involved. I have no knowledge in the use for CIDP but I can’t imagine that it would “hurt”!

    • Anonymous
      February 7, 2008 at 1:42 am

      [COLOR=”Navy”]Thanks Judi,
      Very interesting. Did the treatments permanently reverse your condition and was the procedure like PE?
      Linda[/COLOR]

    • Anonymous
      February 7, 2008 at 2:57 am

      Photopheresis is more effective in T cell driven diseases like the mycosis fungoides cutaneous T cell lymphomas. I have seen it used in graft versus host disease after bone marrow transplant. Most of the treatments for GBS/CIDP are directed against B cells. Since both B and T cells are lymphocytes, some treatments work for both (like steroids, methotrexate, etc), but some are less effective in one type of another. I do not know the literature for effectiveness of photopheresis in CIDP, but would be cautious because all immunotherapies are not the same and what works for one “immune mediated disease” will not likely work for another that has a different disease mechanism. It likely would be more beneficial to try something that has a better tract record in B cell mediated diseases.

      WithHope for cure of these diseases.

    • Anonymous
      February 7, 2008 at 3:19 pm

      [COLOR=”DarkSlateBlue”][SIZE=”3″]With hope,
      Thank you for the clarification. I knew there was a difference in the type of cells I just couldn’t remember that with CIDP it is the B cells. Thanks. I’m sure too, that if physicians thought it would be helpful they would have tried it. Just a thought.
      Linda[/SIZE][/COLOR]