what do YOU do to feel good despite CIDP ??

    • Anonymous
      September 16, 2012 at 3:22 am

      I would like to hear what others do to “feel good” or get relief  or distraction from their CIDP.   I have horrible pain and numbness in my feet that drives me crazy.  Not to mention the overall fatigue and generalized body ache that comes and goes…..  My ammunition for these are great : i spend alot of time with my wonderful sheepdog Charlie.  Today was a beautiful day and we went to the beach and watched the windsurfers… sat on the sand in the warm sunshine… then we had lunch outside at a dog-friendly restaurant on the ocean.  All i can say is that for a few hours, i didnt even think about my numb feet, or my aches and pains…. it was completely out of mind because i was totally diggin’ the beautiful day and being with my best friend….  i swear sometimes all the narcotics on the planet cant compare to how therapeutic it is to just immerse yourself in something  or someone you truly love.    I get massage on a weekly basis and try to stay as fit as i can with exercise…lots of fresh air, some nice pinot grigio with a great meal,good books and music…  pain medication when i need it a few times a week….. but i think the bottom line is good distraction…   i think i read somewhere on this forum, from somebody else on another thread :  “I have CIDP…. CIDP does NOT HAVE ME. !!! ”   I love that.       wishing everybody the best of luck for sustained health and happiness and gratitude, despite what seems like an insurmountable obstacle.     steven

    • GH
      September 16, 2012 at 4:31 pm

      I have constant pain in my feet, although I wouldn’t describe it as “horrible.” (I don’t know how to compare one person’s pain to another’s.) Just to walk again is a joy when I was unable to walk for months, even though I can’t walk very long. I can live with that.

    • Anonymous
      September 27, 2012 at 6:54 pm

      Steven, you speak truth, and it all comes down to…”LIFE GOES ON” first, and GBS is secondary.

      Mother Nature is very beneficial, I find.

    • Anonymous
      September 28, 2012 at 10:34 pm

      after 6 months of gbs or cidp my hands , feet and legs are still not near normal..one dropped foot..but for 4 weeks i have been doing thai massage and i am feeling like anew person.  i live in the mobile.alabama area…and hard to find any answers..would love to know where others live?    ps..it took one colasped  finger to type the question mark.

    • Anonymous
      September 29, 2012 at 1:10 pm

      A little bit of sport. We have created an exercise room where I can do some training for condition, strength and even some yoga-like exercises. Here I exercise everyday, and once a week I go to a sports center to have some fun with other disabled people. Afterwards I feel physically tired and mentally good. I really can recommend this. And who knows, paralympics 2016 😉 ?!



    • Anonymous
      October 6, 2012 at 9:48 pm

      Yes…. thai massage sounds great… i try to get massage once a week.  also the exercise helps alot… just to move about is good… either on  a treadmill or bike if u can…i like yoga too.  but i have to keep it simple, sometimes pain keeps me from doing anything too advanced.  but that’s ok.   i try to go to the gym a few times a week and realize that ANYTHING i can do for at least a half-hour is GOOD !! it ‘s good for my mind and it’s good for my body, no matter what shape it’s in !!   Steven

    • Anonymous
      October 11, 2012 at 5:14 pm

      I try to keep busy even through I’m so tired from CIDP I’m cross eyed. I like to be with upbeat friends, go out, garden, read and enjoy a lively ladies weekly get together. A slow walk in my neighborhood is great when I can do it.  Being outdoors is refreshing.  My energy is good for 3 hours max and then off I go to prop my legs up.

      When the pain and profound exhaustion gets too much it’s definitely hard to deal with. I find it amazing few can tell how I feel. I know I’ll feel better later (even when it’s awful) and this has become my mantra.