Tiny update

    • Anonymous
      December 8, 2007 at 6:00 am

      I’m sorry I haven’t posted in awhile… I’ve been like a hamster on an exercise wheel – not really getting anywhere despite the effort. I am pretty sure the IVIg is working because most of the time my legs are stronger and my fever has gone below 100.5 a couple of times. I don’t know how long it will take us to get the timing down, right now I’ve got about a week after the IVIG before my fever starts going back up again and I get all my symptoms back. It’s not bad enough that I want to head back to the hospital and all in all I’m improving so I guess we’ll just keep fiddling with the timing and wait and see.

      Yesterday we lost power for about 8 hours and the temperature in the house dropped down to 58 – BRRR! No power – no water – no toilets – and of course NO COFFEE! Anyway, I got very cold even with 4 layers of everything on, feet and hands were freezing and pale, couldn’t stop shivering etc. Interestingly though I took my temperature and the colder I got, the higher my temp. went. It finally maxed out at [SIZE=”5″]102.7 [/SIZE]and just when I was about to call a friend to take me to the ER the power came back on. I drank a cup of hot water first off then ran a hot bath and soaked for a half hour before my temp. finally came back down again to 101.4 and dropped down to 101.1 later in the day. What’s up with that? My temp. has NEVER been that high before – my SIL (the doctor) called yesterday afternoon and I told her about it – she was puzzled too. It makes me suspect cryoglobulins but they have tested twice for them…

      Other than that I’ve been fighting depression, which is why I haven’t been here in awhile. I don’t typically like to share my bad moods/sadness with other people so if you don’t hear from me for awhile, that’s why.

      OK, I’ll leave you with one funny animal story. It’s been a bit cold the past few days, we got some snow, some ice, and lots of wind, and as I mentioned, we lost power a couple of times. Naturally the birds and squirrels are heading to the multitude of bird feeders we have around the house. Most of the time we put enough bird seed on the ground for the squirrels too but every now and then one of them gets ambitious and tries to get to the bird feeder, usually unsuccessfully… Yesterday, however, one clever squirrel managed to get completely INSIDE the feeder, all I could see was his little head watching me as he wiped out the sunflower seeds. It was pretty funny but I couldn’t get a good picture of it through the window and when I went out there he took off spraying bird seed all over me.

      Happy December ya’ll

    • Anonymous
      December 8, 2007 at 8:48 am

      I just don’t get that whole fever thing. Dell has that too, remember? It’s so confusing to me.

      I have a hard time with depression during this time of year myself, so I get where you are coming from that. All I can say is that I hope it passes for you soon.

      I’m glad that you are feeling a bit better. Finding out the right IVIG schedule is a bit complicated at first but once you do I’m sure you will feel even better.


    • Anonymous
      December 8, 2007 at 11:30 am

      Julie, I’m really sorry that you’re having such a hard time with this. Not knowing what this temperature is all about is frustrating and scary.

      I am glad you posted again. I’ve been thinking about you. I still have to mail to you a DVD that is sitting here. There have been some glitches but I have not forgotten.

      Take care.

    • Anonymous
      December 8, 2007 at 2:45 pm

      Hey Julie,
      Glad to hear from you. I had a feeling you were struggling. It seems to me that the fever is in response to your overactive immune system. Your body is getting the message that it needs to fight which sends your temperature up in response. You know, the concept that when you are sick a fever is the bodys way of regulating itself. I may be off, but it just seems like yesterday when it got so cold your thermostat kicked in and drove your temp. up to keep you regulated. Just an uneducated guess. I am sorry that you are having to manage these annoying symptoms. It does get depressing. I think that that daily awareness of what the body is or is not doing is so tedious and draining. I hope it eases up soon.
      Thinking of you,