Tinnitus as a residual

Thanks for the info. Lori. I fortunately haven’t experienced tinnitus yet.

Thank You Lori. I was wondering about that effect. If one ear is affected does the other ear usually follow suit, if one side of the body came back stronger, faster than the other? My rightside is having alot more problems than my leftside is, even though my rightside use to be the dominant side. Hope you are doing better Lori, been worried about ya. Big Hugs!:)

I am not sure if Lori was posting this because she had tinnitis or just wanted to help people. Tinnitis is one of the problems that I have had since the GBS hit. I mostly notice it when I lie down or am more tired than usual. Since there has been some ups and downs in progress–it also seems to track with this–that the tinnitis seems to get worse just before the walking gets worse. I am not sure if this is not due to fatigue, but it is consistently tracking with other smptoms. I thought maybe it was from taking naprosyn (Aleve) to help with pain, but holding this did not change. I searched medical literature for Guillain-Barre and tinnitis and there is nothing. Since this does not affect life in any way and it is just an odd observation of life, I have only once mentioned it to my neurologist. He thinks I am odd enough as it is because how atypical this process in me is from the textbooks. Like Lori and Angel, one side is affected more than the other, and this is one aspect we share that is not “supposed” to be part of this disease. I did not have hearing problems other than it is harder to hear in crowds.

With Hope for cure of these diseases.

I have it too – ringing in the right ear, clicking in the left. It’s not there all the time, mostly when I’m really tired – or surrounded by lots of noise. I always assumed it was related to nerve damage since it started in the hospital and I’ve always had excellent hearing. Maybe it’s not so uncommon after all… 😀

You can add one more to your unofficial count. I had already been dx’d with tinnitis pre-GBS, but it became much worse since. During my hospitalization I lost hearing altogether for about 2 weeks.

I had no hearing problems prior to GBS. As time goes on, I am becoming more aware of it being an issue ~ usually a funny, temporary buzz. (does that mean I could make honey? 😀 )

I have had ear problems before, during and after… my question is what do you think the different sounds mean?

I go from a roar to a ring and wonder if that means anything as far as my middle ear trying to open up?

I always have a tapping in my other year. But I am suffering from some sort of middle ear crap (done drugs and all) and my ear has been plugged for quite a few weeks now. When I first lay down to sleep, it is so loud I don’t know how I get to sleep most nights. And then I have to turn up my radio alarm because if I am on the wrong ear, I will not hear it. Thank God for my kitty, Tigger, as he woke me up yesterday morning when I was oversleeping by 30 minutes.

Nice to know others have lots of noises in their heads too! (And it’s not voices – but I do have some auditory hallucinations.)

Chrissy, Have you tried chewing gum? I recommend sugarless bubble gum-chew until your jaw hurts then rest and repeat. I was told to do that for my ear problems when I was in grade school-even had a script to chew gum in school:D . It worked. To this day, if nothing else I try helps I go buy a few packs of gum and chew and blow bubbles of course, until my problem clears. I have the snapping, popping noise in my right ear now, it sounds like there is paper in it rattling around. The gum is inexpensive, fun, and gives me relief when antibiotics fail. The noise that you hear is from the fluid in your inner ear hitting your ear drum/bones from behind. Have you had sinus problems prior to your ear problems? Thats what usually starts my inner ear fluid backup. Try saline solution in your nose also. These ear problems are a visious circle to get controll over. Take care.

I have problems with my ears and sinus post gbs. My sinus condition is the one that bothers me the most and it seems to be worse at night. This causes me problems sleeping. It feels like I have constant presure in my ears. I guess another condition of this blasted syndrome.:eek:

Thank you for starting this thread. I had no ear problems whatsoever until I contracted GBS in 1990 at the age of 51. Tinnitus started soon afterwards in the form of a high-pitched whistle and has remained with me ever since.

I too have developed tinnitus since my GBS in Jan 2004. A constant chirping in both ears. This is so annoying. I keep the radio or TV on most of the time to try to cover the noise. On my last visit to my Neuro he even tried to hear the sound. He said sometimes others can hear it if the sound is loud enough.
Any suggestions to help would be appreciated.
Bonnie:cool: