Tingly, burning pain in torso 18 months in

    • Anonymous
      February 4, 2011 at 10:56 am

      My arms & legs started tingly, burning pain again a month ago and now today I woke up with tingly,burning pain in my torso for the first time in 18 months of GBS.
      Is this normal? Should I be concerned?
      Don’t have $ to see doctors anymore. And the six doctors I have consulted with including a neurologist are not familiar with GBS.

    • Anonymous
      February 6, 2011 at 10:34 am

      I am reluctant to say that you shouldn’t worry but the fact that you do not make mention of any weakness is a good sign. As a recent second timer, I recall having tingles for quite a long while after my first time. If you have been ‘overdoing it’ you might be causing the sensations you are getting. The mind can also play tricks on us as to think we may be relapsing is scary. If doctors would simply google “Guillain-Barre” when we tell them about it, they would at learn something about it. The neurology folks at the hospital I was at just rolled their eyes at the lack of knowledge some physicians display on the subject.
      I hope by now your tingles and burning have abated some.