The rest of my story

    • Anonymous
      October 11, 2006 at 12:33 pm

      I appreciate the information and response received so far. I also appreciate the many other postings I have been able to read and even though they are not always encouraging they are very helpful.

      Sounds like I am one of the luckier ones!, although I was hopeing that what I have would be more temporary. I have to laugh at myself now. While in the hospital I thought and talked of things I would be doing when I got home. Now 5 months later I haven’t been able to do any on them.

      When I got home (after only 5 days) I had a catherter, couldn’t walk with out help. Couldn’t sleep (the drugs I suspect) was numb and tingling all over, found talking very difficult, couldn’t control the movement of my hands and fingers and was in some pain. I was on a program of Prednizone, 80 Mg per day. Now 5 months later I am down to 5 mg per day. My depression is fleeting and normally doesn’t last very long. The worst side effect is the bloating and swelling. I am without pain most of the time, I walk without assistance (other than hanging onto walls, hand rails etc.), although very unsteady and with drop foot in both feet. I am back teaching college classes and yesterday I even mowed part of my lawn.

      Things I am courious about: I feel extreme pain in some muscles when pressed, like when my grandson steps on my calfs. On most days I get stronger and feel better when I force myself to be active. My wife says I snore much more than before.

    • Anonymous
      October 11, 2006 at 6:42 pm


      I had to chuckle when I read your last post because I reacted the same way when I was sick with GBS. I just assumed it was like every other illness I’d ever had up until then, and it would be gone in a few days. lol! I guess it was a blessing though, because I was never scared. I only got worried when I didn’t have a diagnosis after 3 mos.

      Don’t know the reason for the muscle pain, but the snoring may be because your throat muscles were effected by your illness. I had one vocal chord paralyzed, so I know it can effect your throat.

      Best wishes for continued recovery,


    • Anonymous
      October 12, 2006 at 8:55 am

      Thanks to you Clyde and Suzanne, it was a walk back to those eary days of GBS. I guess many of us think that after time it will just all go away.

      Clyde I don’t know if it is muscle or nerve damage. I still, near 6 years since the onset of GBS, have pain in my back in my upper thighs. It is less with time however when I get sick or if I am over tired it is more pronounced.