The battle is over

    • Anonymous
      May 14, 2007 at 3:25 pm

      My mom passed away on May 8.

      As you know she has had Guillain-Barre and been on a vent since November 2006. The GBS probably had nothing to do with it though.

      She suffered a massive heart attack Tuesday morning. All day her blood pressure stayed around 70 over 45. We were with her all day and she died about 30 minutes after we left. (some people say they wait for you to leave) She wasn’t conscious or awake at all while we were there. It took them an hour to revive her from the first heart episode so they said even if she were to make it through, there would be significant brain damage and organ damage from the drugs they were giving her all day to maintain her blood pressure.

      We fully expected her to recover from GBS – in spite of how slowly she was doing it. My assumption is that her body (and mind) could not handle the stress of being paralyzed for the past 6 months. Unable to communicate or move. Part of me feels bad for telling her to “work hard” everytime we went to visit. But I just didn’t want her giving up.

    • Anonymous
      May 14, 2007 at 4:29 pm

      My deepest sympathy to you and your family. You should not feel bad about telling her to work hard. I am sure that there were many times that she was your biggest cheerleader and you did not come out on top, But you always knew that her love and support was allways there as she did know you was there loving and supporting her. If we can do anything for you let us know. Take care and God Bless!!!!

    • Anonymous
      May 14, 2007 at 5:50 pm

      Hello Zinnia,
      We are so very sorry to hear that your mom has lost her battle. If you believe in angels, your moms angels were holding her hands when she died, she was not alone. Our prayers are for you now and for all in the family. Maybe you can feel the hug that I am sending to you.
      From my heart,

    • Anonymous
      May 14, 2007 at 6:29 pm

      [B]Hi Zinnia,

      My Deepest Sympathy on your Mom’s passing. I know how hard this is for you. My husband also passed away from a massive heart attack 6 years after GBS/CIDP.

      May God hold all of your family in his arms to get through this trying time.[/B]

    • Anonymous
      May 14, 2007 at 6:52 pm

      I am so very sorry about your mother. It’s hard to understand why these things happen, but please PLEASE do not blame yourself. You only told your mother to work hard because you love her so much and wanted her to get better. This is a horrible turn of events that truly was beyond anyone’s control.

      I wish you peace and healing at this difficult time. My heart goes out to you and your family.

    • Anonymous
      May 14, 2007 at 6:57 pm

      Zinnia, my heart goes out to you. I lost my dad a year ago and finally got around to reading a suggested book, read it from cover to cover and it really helped with the loss of my dad.
      It’s called “90 Minutes In Heaven.” You may not want to, or have time right now, but my wish for you is that it helps you as much as it did me.

      Jay Dee

    • Anonymous
      May 14, 2007 at 7:21 pm

      You and your family have me deepest sympathy. At a time like this words fail to offer comfort. May God grant you and your family comfort in this time of need. You and your family will be in my prayers.

    • Anonymous
      May 14, 2007 at 7:36 pm


      I’m so sorry to hear about your mother. I hope you find comfort in knowing you did all you could do to help her. Your mother and you will be in my prayers.


    • Anonymous
      May 14, 2007 at 8:59 pm

      I along with the others are so sorry for your familys loss. Even though I don’t know you personally I am sure your Mom could feel your “Love and Support” during her long and slow road to recovery. She definitely must have been a wonderful woman to have raised such a caring daughter who has reached out to become educated about her disease, not every family member wants to know. Never doubt yourself, I needed my family to remind me every day to keep going there were so many days I would have loved to curl in a ball and stay there, I still have those days 5 years later. “Take Care” and my sincere condolences.

    • Anonymous
      May 14, 2007 at 9:05 pm

      Zinnia ~ I am so sorry for your family’s loss. Thank you for the support that you were to your mom. We truly do honor our caregivers. I will remember you all in my prayer thoughts.

    • Anonymous
      May 14, 2007 at 9:22 pm

      We have lost a great person from earth but gained a great caregiver that has been strong in her support to us and her Mom. Zinnia I am so sorry and wish I could reach out to you and your family! Stay strong! You are a very caring Daughter! You have been an inspiration to all of us in the way you continued to care for your Mom. You are in our prayers! You are a great asset to our family here!

    • Anonymous
      May 15, 2007 at 1:26 am

      I’m so sorry for your loss.You and your family are in my prayers.Your mom knew you loved her!Take care.

    • Anonymous
      May 15, 2007 at 3:28 am

      Hi, Zinnia.

      Know that we’re praying for you and your family during this sad time.


    • Anonymous
      May 15, 2007 at 5:55 am

      My heart goes out to you and your family and wish you all the strength you need to get throught his difficult time. Dont forget it has been a hard time on you too, you have had to be strong for your mom, make sure you take care of yourself.

    • Anonymous
      May 15, 2007 at 6:55 am

      Hi Zinnia

      My thoughts are with you and your family at this time. Please take comfort that your Mum is at peace now and cherish all the wonderful memories that you shared together. Mum will never be far away 🙂 All the best and take care.

    • Anonymous
      May 15, 2007 at 7:50 am

      Zinna, My heart goes out to you and your family. I know there isn’t a lot one can say that is going to ease your heart but do know that your Mother is with the Lord and not suffering anymore. She is finally at peace and not hurting anymore. I will keep you and your family in my prayers.

    • Anonymous
      May 15, 2007 at 1:23 pm


      A big cyber hug to you. You have been on a tough road and will be for a bit. Your mother is at peace now and no longer in pain or any kind of suffering. My heart really goes out to you – I lost my mother 8 years ago and everyday I think about her. I believe a daughter/mother relationship is the most special on this earth. You can thank God that you had the opportunity to have your mother as long as you did.

      My sincere sympathy to you and your family.

    • Anonymous
      May 15, 2007 at 3:56 pm

      Zinnia your loss is their relief and I know that dosen’t help much right now. I told my Mom it was ok and to give my Dad a big hug for me before I left for work and they called me 30 min. later. My Dad died at 55 and my Mom at 77 and she never got over him.She never even would go out to lunch or dinner with a man. I asked her one time and ONE time only why and she said no one could ever meet up to her expectations. Says alot for my Dad but scares me because I’m in similar health and getting very near his age.
      May God be with you and your family.

    • Anonymous
      May 16, 2007 at 11:10 am

      Zinnia, My Deepest Sympathies go out to You and Your Family. You should feel proud that you did your best for your Mom, when she needed you most, you steped up and got the job done. Celebrate Her life, that’s what She would want You to do. You and Your Family are in My Prayers.

    • Anonymous
      May 16, 2007 at 7:26 pm

      [COLOR=red]very sorry for your loss 🙁 [/COLOR]

    • Anonymous
      May 17, 2007 at 1:10 am


      I am so sorry for your loss, your Mom is in a better place. You and your family are in my thoughts and prayers.