Thanks to all for the helpful info. Consultant increased Prednisone to 80 mg, stay on same dose of CellCept and continue monthly IVIG. States we won’t know for close to six months if these treatments will kick in.
Rituxan is not covered and we can not afford it. Rheumy is looking into how one can get it for less money. Neuro is not interested in trying it at this time.
Being as this group is rated as one of the top Neuro groups i will just have to trust them and hang in there.