I’m not going to advise you one way or the other. It’s a personal decision you will have to make on your own.

I will tell you though, if you are taking IVIG you need to discuss this with the dr’s. I was told that IVIG essentially cancels out immunizations taken within a 3 month period of an IVIG treatment. Some dr’s may still advise a person to get the immunization though.

Some tetanus info:

A person gets tetanus when endospores of Clostridium tetani enter damaged tissue. Clostridium tetani is found as spores in soil or in the gastrointestinal tract of animals.

Hope that helps!
Kelly

I’ve been on IVIg since 2005 and recently need a tetanus shot. After a little research I went ahead and got the shot. Talk it over with your doctor. It is a risk / reward situation.

PS I also had to take the rabies vaccine. The only side effect is a maddening desire to whole at the full moon. :rolleyes:

[FONT=”Microsoft Sans Serif”]The gentleman I have been posting about, the one who used turmeric to reach remission– his CIDP started up directly after a Tetanus shot as well.

Scary.[/FONT]

mogo,
What did you decide to do and how are you?
Wendy 🙂

Ouch! Please be careful – I know that my daughter looses her balance when she closes her eyes (shower).

Here’s something I found useful – I know it sounds kinda strange – it took me a while to decide to get some, but now I keep it on hand for just this type of injury. Also good for ezcema. It is “Manuka honey”. Here is a link to a Canadian site.

[url]http://www.manukacanada.com/health_benefits.htm[/url]

[url]http://www.wedderspoon.ca/manuka_honey.php[/url]

I found it interesting – in the USA, it is classified as a “medical device” by the FDA, used in hospitals for surgical wounds, and has also been used as a treatment against mrsa infections.

I don’t know about tetanus (you didn’t get scraped by the hooks, I hope?), but it may help w/bacterial infection, swelling, and hasten new skin growth.

I have always been a nature nut, but after my daughter became ill w/cidp, I rely on natural remedies more than ever. Also, both my daughter and I are weary of always being on guard for medics that don’t always understand the potential dangers of vaccines, meds, etc.

Hope this helps,
Take care, and Be Careful!
cd

Sue, that sounds really painful! I would try the m honey or aloe vera also. Take Care.

After inquiring about the tetanus shot, and being told not to get it for Kevin, I was also told that a thourough cleaning would suffice in most instances. Now that doesn’t just mean putting some neosporin on, but a good sterile cleaning, with some rubbing, especially it there were rusty metal objects. Regarding the hooks, aren’t they usually stainless steel? Maybe some one else can answer that.

Good luck and good healing!
Dawn

We were told that by the time you start feeling symptoms, an attack is already in process. Maybe you too should try a maintanence schedule like we are going to do with Kevin. But you would have to start from scratch with a loading dose. Tired, weak, off balance, sound like red flags. Try to get the earliest appointment, tell the scheduling person you need treatment SOON. Good luck!
Dawn

Sue,
I’m sorry to hear about your latest troubles. I hope they resolve themselves.
but, as Dawn said, can you get on a regulare IVIG treatment schedule? I get them now evey 5 weeks. I don’t unde3rstand why you should wait until it’s bad to get more if it’s working for you.

take care,
Caryn

Hi,
This is a tough one. I had a number of “events” leading up to my GBS and no one is sure which if any had any influence on my GBS. I went into the hospital the last saturday in January 2004, with noticable GBS systems starting on the previous thursday ( my tongue was numb). Before that I had bronchitis in October 2003, pnemonia in November 2003, a flu shot in December 2003 and the flu the end of December 2003. Take your pick, it could be any, all or none of the above. I also remember in the fall and winter of 2003 having much fatigue. Being so tired at work and thinking I would never make it through the day let alone the drive home. It was different from anything I had experienced before, like hitting the wall. Could this too have been leading up to my GBS? My job situation was stressful, I sometimes wonder if I would have quit would I have recoved physically & mentally where the GBS would not have happened?
Ever since my GBS I have had one goal, To return to the person I once was. I have recently realized that this is not going to happen, it is difficult to come to terms that I am no longer a healthy person. This is as good as it is going to get. Good God I sound depressing….I need to get out more!!
Bonnie:cool:

garys,

great ques!

no trigger could be established for me, but a few months before my onset i started having itching attacks. they stopped w onset, but came back a short time thereafter. still get them to this day, a real annoyance. zertec helps. take care. be well.

gene gbs 8-99
in numbers there is strength

Hi: I had the flu-a 24 hour bug with nothing but aches and fever-and then two weeks later I had the same flu. This was in February. In April I had pain in my back and legs so bad they thought I had sciatica. May 11 I was in the hospital on my way to paralysis. The docs thought the flu in February was the culprit and the pain a slow leading into GBS. Jeff

i had surgery on my left knee 2 weeks prior to my 1st paralysis event. after my surgery i had a wierd infection in my left thigh, my pcp thought it was cellulitis, and put me on tequin, an antibiotic. my ortho saw me the day before i went paralyzed and told me it wasn’t cellulitis, but i needed to see my pcp imediately. so that afternoon i spent 2 1/2 hours in his office going thru test after test with normal results, then they thought i had a pulm embolism and scheduled me for a ct the next morning. i was paralyzed that night, late, and wasn’t treated with anything until i had my 2nd event in oct. since then i have had 4 events all together, each was preceded by different health issues. food poisoning, diahrea, pneumonia, now my neuro thinks she has it narrowed down to either an allergic reaction or a tumor. personally i think anything can trigger gbs.

Docs don’t know for sure what caused my GBS, but 2 weeks prior to getting it, I had minor surgery. Recovered normally, no problem, but 2 weeks later started with intense leg and back pain, progressing to partial paralisis.