Symptoms get worse as day progresses
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October 16, 2006 at 7:39 pm
I’ve been complaining of weakness and tingling in my arms for over 4 months now. Had a NCV early on of shoulders and arms and doctor said all was normal. Since then this thing has spread to my chest, lower back and legs. I’m still not sure what I have. Head feels like it is in a vise. tingling and numbness in cheeks, forehead, around my eyes and nose. Arms are weak but can use them. Neck gets sluggish and won’t turn as easily. Heavy, heavy feeling comes over me, like I’m being dragged down to the center of the earth. Lower back has gotten weaker, I can feel a difference in the way I’m breathing. My thighs get very weak and cramp from time to time and it is difficult to walk at times. The symptoms get worse as the day progresses, by night I feel like I’m going to lose the ability to walk completely. But still have moments when all feels normal. MRI came back clean – no sign of MS. So Doctor is telling me that my symptoms could be Mygraine without the pain.
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October 16, 2006 at 8:20 pm
There are many people in the medical profession that have told me that anyone with a nuero disorder will get worse at night. no one could give me a good reason why but they all seem to be on the same page about this..
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October 16, 2006 at 9:47 pm
I had problems/feelings for over a year before I came down with double vision, face, mouth and balance problems – my spinal tap proteint count (930 help them dx’d me with Miller Fisher – please contact me and I will tell you the whole story.
Sally -
October 16, 2006 at 10:30 pm
Hi Gabby, welcome to the family. i have had migraines for over 18 years along with other auto immune diseases, and i have never heard of those symptoms described as a migraine. there is such a thing as migraines without pain, has nothing to do with worsening of symptoms as the day wears on. i had migraines worse before and during my paralysis events, but they never got worse at night. my fibromyalgia and asthma gets worse as the day goes on but not the migraines. have they come up with any type of meds that they say will help you with your painless migraines? if not ask them why not. they can also tell if you are having a migraine by doing the eye test on you. have they checked your reflexes? you might want to get info on the migraines and take it to them and tell them what is the difference between what you read and about what you feel-do a comparison of sorts. ask the dr as many questions as you can come up with as to why they think your symptoms are what they say it is and why not something else. if you don’t get answers or a dx soon i would get another neuro dr. take care.
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