Support Desperately Needed

Emily, I am so sorry! I am never up this late on the forum, something made me look. I hope I can help you. In spite of ALL of the hardship and death that surrounds you, God has chosen that you should live. Take this as a sign of good things to come. I do not even know what to say to convince you to be strong, I cannot even imagine the turmoil you must feel. I can tell you that when faced with premature death, you eventually do start to heal, many years later, but it does happen. I do not understand to this day why God has chosen to hand me bad cards either, I too have had cancer, buried a baby boy named Andrew and now my sweet baby Kevin has been stricken with gbs/cidp. Not even the dx is simple! Like you, I cannot figure out why God is doing this and why he continues, I too wonder how I can go on sometimes. But I do and I will, I have my family and they need me. YOUR FAMILY AND FRIENDS NEED YOU TOO! Some where you have to find strength, you have your future ahead of you and things will get better. I know they will, I am banking on it for Kevin, Abby, Emily, Nate, Dell, Cody. You, annother Kevin, Lydia, Jenn, Cannaris and all of the other sweet little children and young adults. I pray for a cure like so many others, all of the adults on this forum think about you children and young adults all of the time. Everyone together is going to get through to God eventually. In the meantime, please keep strong and patient. I hope you can get just a little rest tonight and a little more the next day. Please know that even though we do not know each other in person, we know each other as caring human beings, and I care about you and will pray that God gives you strength to feel better. Call your close friends, rely on them and your family! E-mail me if you like tommorrow, or should I say later today. We should be home from the neuro by 12:30pm. Love Dawn Kevies mom:o

Hi, Emily.

I’m so sorry about all the sorrow that you’ve had and continue to have. Please know that I’m praying for Amanda and for you during this difficult time. Keep us apprised of what happens.

Deb
London

Emily, Well I’m not sure where to start but do know that my heart goes out to you with all that has happened. I will pray for you and Amanda. God will do what he feels is right even if we don’t quite understand. But I realize that doesn’t make us feel better but know in your heart that he is always with us to get through all the hard times. You can email me and or call 5175438974 if you just need someone to talk to. Try to keep your chin up and get some rest too. Do take care and know I am here. God bless you and your friend too.

Emily all I can do is send you big Mom Hugs, so please wrap my arms around you and feel the love and caring that we all feel for each other here.

Hi Emily!
I’m sorry you’re under so much stress. Remember God is in control.
He cares for His children.We all here love you.You, your family and
friends are in our prayers. Stay blessed.

Emily,

I don’t know what to say,just I’m sorry for what you are going through. Some ppl. are dealt so much and I don’t know why.

We have a 3 year old with CIDP. Dell was not planned, we were not going to have anymore children, Kirk’s mother was dying of kidney cancer when I became pregnant and now, he has this horrible disease. I don’t know why.

Life is not fair sometimes and that’s all I can say. Of course I will remember you and your friends in my prayers.

Hope your days get better soon.
Love, Lori

Hi,

I love your name. My oldest daughter who is 24 is named Emily. I’m also so sorry for your loss. I will pray for you and your friend. It is hard to experience losses. You are in such deep pain that you cannot describe it. I feel I lost part of me when I contracted GBS in 2004, a severe case, from which I will never be the same. I have adapted but miss the old lifestyle. The plans I had have been changed. I must say I look to my faith in Christ to guide me through. I read in a devotion that it is in the difficult times that God grows us to be more like Christ. That is our goal to become like Him although we will never reach perfection until eternity. God doesn’t cause these things to happen to us and He knows everything we are going through because He himself came to earth as Jesus Christ and experienced more pain then we will ever experience. Find strength in Him and those who comfort you. I believe someday you will be used to help someone else along the way.

Caroline

Hi Emily, I’m sending you Big Hugs also. I know how you are feeling, there is no easy answer to your questions concerning Why me. I had ovarian cancer in 04, by the grace of God i caught it in the immature cell stage. went through the total hyst surgery also. I have lost many young people in my life, my 21 year old cousin, about 19 years ago. just this year i have lost 6 acquaintances, friends and family, and my f-i-l is battling stage 4 cancer also. life isn’t fair in alot of ways, thats why God gives those of us, who are strong, alot to handle, because He knows we care and will get through the hard times. I believe there are always lessons to be learned and it takes a strong person to look for that lesson and learn from it. it will take time to get through these tough times, now and in the future, but you will be able to handle it, with poise and strength. You know you can count on This Family to be here for you in your time of need, we care ALOT about you and feel your sorrow and pain of All sorts. Take Care, Emily.

Emily,
You and Amanda will be in my prayer each day. I know that you are under a lot of stress. I pray that the Good Lord will give you and Amanda the strength and the courage to face the days that lie ahead.

Jim C

Hi Emily,
Caroline couldnt have said it better. We encounter these “burdens” because they draw us closer to Christ. He went through the ultimate pain and death so that we can “put on Christ”. Although it seems like we will never make it through these turmoils, he will never give us anything we cant get through without him. What you are going through is so tragic and my heart goes out to you. I had a second episode of GBS 2 years ago, which was very severe and I almost died, the only thing that got me through that was my faith and how much I had to be thankfull for. In the end I actually was able to say that my GBS touched other peoples lives and I was a “witness” to them. Since then I have lost my Father(62) to suicide, my Stepfather(62) to a heart attack and just lost my Mother to stage 4 lung cancer (64). I take one day at a time. It is only my sister and myself left and I go through so much thinking about losing her and my husband and daughter. DONT be affraid to take medications to help you get through this (I hate meds but learned sometimes you cant do it on your own). Get your rest and if you need a sleep aid once in a while…use it. I will pray for you and your friend and I pray that you are able to witness to your friend so that any fear she has can be diminished knowing that God loves her and will never let go of her. This forum is a classic example of how we need him and one another. Take care. Joanne

How much you have had to go through in your short 24 years. Young people & children should not be born disabled, should not get seriously ill, & should never die, period. That is in a perfect world. Unfortunately, as you have learned by now, we do not live in a perfect world. Why these things have to happen, no one can answer, not even the clergy really try.

I wish I had an answer to your questions of why, but all I can do is offer you my love & support as so many other wonderful members have done. Your pain is all of our pain, we hurt when you hurt. And I would give anything to be able to be there in person to give you that hug that you need right now. So instead accept my prayers & my love, I feel like we go back far enough for me to say that. Also, email or call if you need more…
Blessings, Pam

Hello Emily,
You will be in our thoughts and prayer’s that you will have the strength to be there for your dear friend. And you will be in our thoughts and prayers that you yourself will be able to get through this and not understand, but to endure. THIS IOU is for you:
ONE HUG EACH DAY, TO PICK IT UP JUST CLOSE YOUR EYES AND FEEL.

[IMG]http://img404.imageshack.us/img404/7304/hugswhitebearii7.gif[/IMG]

Emily,
I just wanted to add this, leaning on the Serenity Prayer may help.

[IMG]http://img106.imageshack.us/img106/3867/serenityprayerje5.png[/IMG]

Emily – I’m praying for you, Amanda, and Amanda’s little one.

Dearest Emily,

How my heart goes out to you! As always, words fail me at a time like this, but I hope that knowing all these wonderful forum family members are thinking, praying and reaching out to you will somehow bring you some comfort in these trying times. God Bless!

Hi Emily,
Im so sorry to hear that more and more bad things continuously happen to you. I really hope your friend is ok. And im sure she’ll pull through. You’re right. No one should go through any of this ****, and you’ve had to deal with it on an entire diferent level. I will pray for you and your friend. I hope you and I can meet and become close friends because we are the same age almost and share a lot of the same interests. I know its hard but try to take it easy.
Here for you always,
Jenn

Emily –

I am praying for you and your friends.

Chris

Emily,

You and your two friends are in my prayers. I hope things will look up for you and for them soon.

Suzanne

Emily, My heart is breaking for you. I wish I could be there to give you the shoulder to bawl on. You and Your Friends are in My Prayers and Thoughts. Take Care, Hun!

Emily, My heart goes out to you. The main thing and I am not preaching, just made sure you have ask the Lord to forgive you of your sins and be saved. That will not make life any easlier, but it does when we pass from this world.
I am alot older then you but can feel for you. I lost my grandmother to cancer and had both breast removed due to cancer. Then I got GBS/MF and have struggled with that for years now. I will definitely keep you and your friends in my prayers. If you would like to talk to someone on the phone, please e-mail me at willierigdon@comcast and I will give you my phone number or I will be glad to call you. Sometimes it really does help to just have someone in person to listen to you and comfort you. May Gods Blessing be Upon You.:)

Hey Em,
Wow your luck doesnt get any better. Im so sorry about all of your friends and there luck as well. I truly hope the baby and veronica And Amanda are okay. Somehow God shows us he loves us. But lately he’s been challenging you. Im sorry. I hope everyone gets better and you stay well. I know its hard not to get worked up…but try like hell to not relapse. I dont want to see you go through everything again. Always in my prayers Emily.
Love, Jenn

Emily, You Are the Amazing Person! You are such a Great Friend to All those in Need. I feel so bad for You. Your strength is just Wonderful. Please know You and Those around You are always in My Thoughts and Prayers. Take Care! Big Hugs!

I am far away from you but in thoughts for you I am close. Please accept my hugs and prayers for you and your Loved ones.
Kind Regards
Paul

You Have all my prayers. Take care Em and really as hard as it is, try and take everything slow and relax. Love u, Jenn

Emily,

I’m so sorry for your loss at this sad time in your young life. You have demonstrated such strength and resilience in your struggles; you are a hero for young people with chronic illnesses to look up to. My thoughts and prayers are with you now and in the days ahead. May the Lord hold you close, and give you peace.

cd

Emily,

Just wanted to add another ******{hug}}}} for you. I don’t have any answers as to the why’s of all these things in life and at the same time. Please keep the ‘faith’ – whatever that means to you.

We are here – please keep us posted.