superbug

I also wanted to add, the hospital knew about his CIDP when he was admitted.

I would have never thought of eating yogurt either. Our home health care nurse suggested it to us or buy the lactobacillus. She said it is in the yogurt. The day I picked up the antibiotic for my husband the pharmacist said this is some serious stuff. She should me what the actual cost was and I had never seen a RX cost that much. She told me the vancomycin is used to kill c-diff. and to make sure he takes it all. He finished it last week and he is finally getting better, I think with his CIDP it would have killed him. I am glad our podiatrist switched infectious disease drs. for us.

[QUOTE=Dawn Kevies mom]Hi Cookie girl,
I am so very sorry for all that your husband and yourself has gone through. I hope he is continues to improve quickly. Thank you so much for mentioning to take yogurt or a supplement if receiveing the iv antibiotics. Is your husband on steroids for his cidp or cell cept? I was curious why they said his immune system is weakened from cidp. We were told the opposite, it is overactive and is attacking the myelin sheathe/nerves. Now I am confused. (Lateley I am more confused than not!!) Best wishes to you and your husband.
Dawn Kevies mom[/QUOTE]
Maybe I am the one confused. I remember my husband telling me that this disease attacks his myelin sheath. He is only on pain meds at the moment. He did the cellcept for 6 months maybe 8 nothing happened. We did the IVGA and the plasphameresis, forgive if I am not spelling these correct, but you all that have had these done know what I am talking about He had to go every day to an infusion service center both times, neither one helped. After this last bout with the superbug he is scared to do anymore transfusions. After reading how contagious it is I am glad that I wore gloves when I was taking care of him. It started in June and is just now slowing down. I think I would have already gotten if I were infected. One of us has to be healthy. I eat yogurt extra for now just to be sure I did not catch it from him. Yogurt does have calcium in it also that women need. I know that I have had pharmacists tell me to eat yogurt when you finish any antibiotic. This superbug is international I read articles from Canada and England where people have died or infected with it. What irritates me is the first infectious disease Dr. gave him a blood test and it did not show the superbug so they kept giving him the infusions. My HUSBAND FINALLY JUST REFUSED TO TAKE IT ANYMORE.He said it is killing him and he did not care if the gangrene came back. I know I will forever eat yogurt one every day just to be safe. You are correct that most Dr.s do not know what CIDP is. They know what GBS and Lou Gherighs (ALS) so I always tell them it is similar to those two. I could keep typing foever I am just so upset at DR.s in this modern time could not figure out it was the c-diff until he refused to take the infusuions anymore. Clyndomycin was the infusion antibiotic that gave him the c-diff. Our internal medicine that he sees for his diabetes told us sometimes you can have for up 2 years. My husbands immune system will not take it that long. He will die. I pray that the vancomycin kicked it out for $4000 it should have. The insurance companies are going to wise up and quit paying for the hospitals mistakes. Thanks for listening

[QUOTE=fairly_odd_mother]I am sorry to hear your husband has been thru so much!

A lot of people dont realize that most of the bugs we get start in our intestines. If we keep the good bacteria levels up it helps our immune systems. On occassion I will grab a Naked Juice Probiotic shot and drink that. Another good supplement to take is arabinogalactan. It is the main ingredient in Airborne. It helps feed the good bacteria in your intestines and ups your immunity to bugs.[/QUOTE]Hi, is that a juice in the health food section of the store. I have never heard of it. Also, the other supplement you mentioned is that in the vitamin section or do you have to go to a health food store to purchase it. Thanks

[QUOTE=ConnorZmom]cookiegirl,
Thank you for sharing your story. I have cidp. Back in June I had gotten very sick with what I thought was the flu. It was the worst I’d ever had and I could hold nothing down or in for days. I finally called my dr b/c I got to the point that I couldnt lift my head off the couch, literally. I felt almost like I was dying. Very strange feeling and hard to describe. I think having cidp sometimes makes even minor illness alot worse. I’m learning the hard way.

I was very dehydrated and it took many many attempts to even start an IV. The day I went to the ER, I had started having bad pain in my ovary area and I thought I had the flu and a cyst or something. They admitted me into the hospital…did a slew of tests including upper GI and a colonoscopy. Thank goodness they knocked me out for that….but found that I had C-DIFF.
I was hospitilized for an entire week . Nobody asked twice about the CIDP…they rarely do…they dont know what it is.

They said I likely got mine from taking antibiotics recently b/c of bronchitis. I had no idea what it was and three days after being in the hospital, suddenly, the nurses were gowning up and wearing gloves and started to come into my room a whole lot less. It was like I had a horrible plaque or something.

Having c-diff, I was very very sick….now every time I have an issue I get worried that it’s come back. Evidentally, re-infection is pretty high risk.
I have alot of stomach probs as it is….I dont feel good about 75 per cent of the time. They wanted me to bring a sample in. I declined that offer. I’ll know if it’s back I think. I’m not going to run a sample to them every time I have an issue.

I was told to also eat yogurt with the antibiotics they gave me for the c-diff to prevent yeast infections. It’s awful that our meds to make us better can sometimes make us so much worse.

again, Thank you for sharing your story…I hope your husband never has to go thru that again.

well wishes,
Stacey[/QUOTE] I thank you for your story also. After reading about you c-diff experience I see my husbands might return. We are not for sure it is completely gone.He just finished the medicine for that last week. I know we were suppose to go to our sons house for his birthday and he had to cancel because he was having trouble again this morning. It was just not as bad as it was in the beginning. If you do not mind me asking how long did it take for you to get over it. He took the vancomycin for 30 days. He did the pill form because he was scared to do anymore infusions. Thanks