• June 18, 2014 at 5:12 pm

      So, I have had this for 3 years now and have had my share of shocking sensations, especially when IVIG is wearing off or I am having some sort of an exacerbation.. but one thing that is new is that I am getting shocks in my trunk now… in my mid back at times.. and then also in my chest (mid chest under sternum) and then it shocks out to my right arm all the way to my palm.. it takes my breath away. is only fleeting, but it does kind of paralyze that arm for a few seconds (probably due to the pain)..
      They happen more when my IVIG is wearing off.. but it is quite uncomfortable! ANyone else have these? I tried extending my IVIG to every 4 weeks, instead of 3, and the shocks became unbearable in my lower extremities and I became weaker all over, swallowing and everything.. sooo that was a no go! Hope everyone is doing alright!