Searching for what others are saying about GBS or CIDP?

    • Anonymous
      June 6, 2011 at 2:06 pm

      I stumbled across a search site described thusly,

      “[I]Omgili is a crawler based, vertical search engine that scans millions of online discussions worldwide in over 100,000 boards, forums and other discussion based resources. Omgili knows to analyze and differentiate between discussion entities such as topic, title, replies and discussion date.[/I]”

      In other words, it is a web based crawler website which is allowed to mine everything said on this board and to freely post it on their own site located at

      big brother is watching…..

      From Wikipedia: “A Web crawler is a computer program that browses the World Wide Web in a methodical, automated manner or in an orderly fashion. Other terms for Web crawlers are ants, automatic indexers, bots,[1] Web spiders,[2] Web robots,[2] or—especially in the FOAF community—Web scutters.[3]”

      See for yourself. Go there and search for anything- cidp, gbs or even your own gbs-cidp user name.

      Happy searching.

    • Anonymous
      June 6, 2011 at 8:52 pm

      Scary. I had no idea anything like that existed.

      Thanks for sharing.


    • Anonymous
      June 6, 2011 at 9:36 pm

      When I was posting here on infusion problems 18 months ago I Goggled my post and there it was”’ I deleted my posts but is it still “out there”?
      Be careful of subject headers and maybe out an asterisk in certain brand names.