AnonymousSeptember 16, 2008 at 12:15 am
When I was sick and just gone to rehab I started to run fevers every night of 102.5. No explanation though they did every test in the book. Now every few months or sooner for no apparent reason I begin to run a fever and get sick as a dog. My fever last night was 100.00 which is high for me and I felt awful. They still have no explanation. Some docs think it is not GBS related and one thinks it is the same virus that originally triggered GBS still locked in my body. One neurologist told me it was the most important of my residuals and that I should watch it carefully-but, of course, there is nothing to be done about it. So this past week every other night I have had a low grade fever and felt pretty sick. Of all my residuals, including pain, this is the worst-it makes me nervous to know it can come anytime for no reason and while it passes after a few days I wonder what it is doing to my body and if it will get worse as I get older. It is lonely going through something like this when noone understands or can help so I thought I would write and moan a little. Jeff
AnonymousSeptember 16, 2008 at 1:35 pm
Jeff, I have that same kind of pesky fever, every evening and night. I mention it to all my drs when they ask about history-some have even told me its hormone related–NOT! I just ignore it and if it goes further than the nausea stage I take anti-nausea meds. I think its related to resids, because there are many who have it. Its just another of those things that is unique. Please know I’m sitting next to you and moaning the same tune!! Hugs!;)
AnonymousSeptember 18, 2008 at 9:17 pm
Jeff, I have run slightly elevated fever a few times with no apparent reason. Did not not get sick with it and didn’t think of it being GBS related at the time.
Please don’t leave. I look forward to reading your post and seeing what words you come up with in word game.
AnonymousSeptember 19, 2008 at 2:49 pm
Please don’t leave! You belong here with the family here! Hey! Your my family here and I need you around just like many others that will be coming along. Believe me! You will be missed deeply! Especially by me and I am pretty sure others too! Plus you have questions too that have been unanswered and need support too!
I too run the morning and night fevers. Low grade fevers. Alot of people with auto-immune disorders have that going on with them. Mine was caused by Lupus. But I’m just wondering if CIDP can cause them too for I have seen the fevers even with CIDP. But Lupus was not being active in my labs.
In order for me to keep my fevers in control I have to take Ibuprophen 3 times a day 800mgs. That helps but please talk to the doctor first before taking. Because of certain meds you are on it might not be the right medication for you. But it’s worth a try talking to your doctor and see if they can RX something to help with the fevers.
But please don’t leave! You are wanted here and cared for in here! Hope you feel better soon! Hugs coming your way!
AnonymousSeptember 20, 2008 at 9:46 pm
Fever is not a symptom of GBS, and is not a residual of GBS. If you have a fever it is from another condition, like an infection. Your neurologist should know this, and either he/she or your GP should have an infection specialist run test to find the source of the problem. It’s probably staphylococcuss aureas that you picked up while in the hospital, but there are many types of “staph” infections, and they all are dangerous.
AnonymousSeptember 20, 2008 at 10:02 pm
Thanks all for your responses. I appreciate your care. I will be sticking around-I was feeling pretty sick and low and felt invisible to the world, but feeling better now and appreciate the family here and my part in it.
Jethro: The frustrating thing is I have had all the tests for infection, starting when I was in the hospital, but nothing ever showed up. There is thus no explanation for the fevers, so it feels like a residual even if there might be another cause. Fortunately it does not come too often but if it increases in frequency or I run higher fevers we will do all the tests again. It is interesting, though, how many GBSers have issues with fevers. Thanks for your thoughtful response. Jeff
AnonymousSeptember 21, 2008 at 6:24 am
Hi Jeff! Hope you are feeling a little better today and wishing you well and glad to see that you are going to stay with the family here. 😉 We all get our days of feeling blue and I certainly understand how that feels. To be on the safe side, I would check with your doctor and tell them about the fevers. It might be infection but then again it might just be something that you have with your GBS. But let them keep checking as to why. I know with Systemic Lupus it’s very typical of that disease to run low grade fevers. Certain medications too at times can cause low grade fevers but normally it’s because the medication has suppressed the immune system to low and now it’s easy for the body to pick up infection.
Something else we have to think about.. which never crossed my mind many years back as getting diagnosed with Lupus. For some reason with me being so young at the diagnoses of Lupus. I alway’s thought that I got a disease and that would be the disease that takes me from this Earth. Not thinking that I would get other diseases right behind it!
Just because you have GBS. Don’t blame all your symptoms on just one disease. Especially if you notice something new or out of the ordinary. I went for almost a year telling my doctor’s that my lupus was giving me a fit and had a weird attack a few years ago and they found a B-12 problem. A Pernious Anemia. Never even thinking it could be something else. I had Lupus and blamed it on the Lupus. Funny thing to, for my Lupus alway’s had spells where my labs would at times be normal and other times not. And that year my labs stayed normal. I was insistant with my doctors it was Lupus. Turned out to be something else!
I say to myself then “Oh Great” what else am I going to get as I get older. I started out with 1 disease and now have several added to the list. Never had asthma and now I have asthma. Never had high cholesterol and now I have that too. Never had arthritis and now I have that! Never had Osteosporsis and that got added on! The list started to grow and then CIDP came along. Now my thyroid.
Here I am in my late 40’s and feel like a 98 year old woman telling you about her ailments!
One lesson I learned but for me I am a little late learning it. Everything got blamed on Lupus. And yet, there were other problems and they were not even Lupus causing it.
So anything new that seems to be different, let those doctor’s know! Feel better soon! Hugs
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