Recovery Or Post Gbs?

Hi we started out w/gbs and were promoted to cidp, so I am only partialy qualified to answer on experience. I can answer based on what I have read from others. Many still heal or have pain issues WELL after, years. It seemed that some people infact have somwhat of a surge about the 20 year mark. Believe it or not, while 40 months seems like an eternity to us to have this crap, in gbs terms, it is really not that long.

[QUOTE=istaroaz]I have had GBS for 40 months now & I had a severe case of it & nearly died. My question is since its been 40 months would I still be considered to be in recovery or would I be considered post GBS. Any imput welcomed.
Istaroaz[/QUOTE]

As someone who has GBS for 48 months now: I considered myself as Post-GBS. I too had a severe case and still have residual issues and what I consider mini-reruns of GBS symtoms… that I have been told are just the way things are and since I can breathe and walk most of the time… I just get on with it.

I am 30 months out of a fairly serious bout with GBS. I was told by the neorologist that most of the improvement would occur in the first year. He was correct in my case. I think the answer to your question is probably a subjective one that must be provided by the individual. How do you feel about it?

I still have residual effects, primarily with numbness and discomfort in the lower extremeties but I am back to walking without aid. Otherwise, I can do most of the same things I did before and no longer experience the enormous fatigue. Given that, I doubt that anyone who experienced GBS or had the job of careing for them will ever be the same again. I would consider my status as post-GBS because I do not feel that I will experience any further improvement nor have I noticed any in the past year.

It has been almost 30 months since GBS hit me (Oct 2007) and for me too it was severe (respirator, no movement at all). I think that from the point of view of recovering the motor nerves and other bodily systems that may have been affected, we are post GBS because as others have said those things should return within a year. But for full muscle recovery, gosh that can take a long time. I have really hardly missed a day with exercise and still the large leg muscles are still not yet normal. The good news is that they continue to improve, but I see this as a very long process!