rebuttals or disagreements to post re:husband in jail

Hi Annie ~ I believe we find our selves in a rather tenuous situation. This is not a forum for judgement of good or bad behavior. I would venture that most of us are not qualified to comment on the prison systems.

These forums are for those of us who struggle with GBS/CIDP and our Caregivers (God bless them!). Those are issues we can speak to. If you have specific questions of the nature of GBS, or how medical personal work with us, or how we make it thru the daily grind, well, there’s lots of personal experience here!

Please do not down-play our individual struggles. Where each of us is today has come “hard earned”. What is not difficult for one can be huge and discouraging for another. Trust me, when we are alone and hurting and scared, it doesn’t mean alot that someone else is “worse off” ~ not that we don’t care but “[I]at that moment[/I]” our personal survival is in our face.

Welcome and I hope that you do find some answers here.

Respectfully, Judi

Hi Annie, Actually since your husband has gbs the thread you want to post in is the gbs adult thread. We use the other threads for other things, it is set up as it is titled, for instance: gbs-adult, cip/cidp adult, the otherside, etc… it is easier if you keep your gbs questions in the gbs thread, that way the gbs people will be able to read it and responde. If you post gbs questions on the other threads, where not all gbs people read or look at them, answers might not come as quickly. I am speaking for myself when I say not all people on this site always read every single thread and every single post, I can’t stand to sit long enough to do that for one thing and I can’t type all that fast with 2 fingers for another. And then there is the times when I just don’t feel like posting anything, obviously not all that often. I think you need to put your energy into finding ways to assist the jail system in your state then to keep bringing up your negative attitude to the already depressed, guilt ridden, people on this site. I am one person who likes to help people in anyway I can, but there is only soo much others can do to help when we are only connected via the web. You need to exhaust all the good leads that others have offered up on your various postings. It will take time, alot of energy, a very positive attitude to accomplish this task, but I think it can be done. I personally have a relapsing/remitting gbs type, which means I can over do things today and lay down to sleep and wake up 2 hours later paralyzed. I have had 10 relapses in the last 17 months, so I have to use my energy sparingly and in the most beneficial way I can, especially since I am married and have 2 kids to raise. I have to make smart choices every minute of every day. You don’t seem to understand that there are other people on this site who come here to get the support they need to get through an hour, a day, or even a night. Who need to ask questions, answer questions, cheer on others, vent, or just need that little bit of encouragement to face the next hurdle with their head held high.
Don’t get me wrong, I’m not down playing your family’s situation, you are just as welcome on this site as everyone else is, I just hope you can see through your anger and try to live life to the fullest and dig your feet in when you have a challenge come up and think positively about the results. A positive attitude will bring positive results. Ask any gbs related questions of us and you will get gbs related answers back. I have never been in the court system even in my state I wouldn’t know where to find answers to the questions you keep asking, except about hippa laws, only because I worked in a hospital medical records dept before my gbs started. Hippa rules are the same in all states, its the law of the land. You know you are more then welcome to vent on this site also, or post questions that your husband has regarding gbs, just please be patient with us for the answers we give and the time it takes us to give those answers. As I always say when I go up against a tuff problem that won’t resolve using the way I used-there is more then one way to skin a pig-if at first you don’t succeed then try try again. Don’t give up on trying to get your husband the care he needs, keep at it until you get results. Take care.

Annie,

Many people took the time to give you any info they might have regarding the legal system. Have you contacted an attorney? How about the ACLU, try contacting them. We can’t solve any of your husband’s problems regarding the legal system and I think you are expecting way to much in that area from all of us.

It’s a medical forum and we can help in that area and no other way. We don’t care if he’s in jail, we just give the GBS info without a question.

I think you are directing your anger at the legal system at us, not fair.

You are the only one who can help your husband, so be proactive and maybe follow the suggestions you have been given. Personally my opinion is to contact an attorney, they know the system, we don’t.

I really do hope your husband gets the treatments he needs for his GBS.

My husband has cidp. I must admit that I have only posted a few times asking for advise when I did`nt know where else to turn. I am very greatful for the warm welcome and all the advice I was given. The people here have given me hope when I thought there was none. I think that is what brought me out of my shell once again to post. I have read through all the comments you have recieved. There was alot of informative information, warm wishes, prayers,etc. My question is why hasnt` that been enough to break through your defencive attuide? Everyone just wants to help not judge. I also have had a family member make a bad choice, she went to jail for 10 days. My brother in law had to fight tooth and nail to get her , her meds. I understand your frustration. My hope for you is when you ask for advice, encouragement, etc. is that you can open yourself up enough to recieve it .I come here as much as I can ,and I do read more than I post. Sorry, but I also want you to know that I recieve so much here. Sometimes I laugh and sometimes I cry but when I leave here I always feel my load has been lightened alittle. I hope you will be able to open up and accept what is being offered. In closing just know that you and your family will be in our prayers.

Annie,
First of all hello and sorry I havn’t been on for awhile. I was reading to basically catch up and of course came to this thread. You know, I realize this is very difficult on all of you and I hate to hear of anyone going thru this. I am sure that you need to vent and cuss and yell and guess what as far as I’m concerned it’s ok to do that. It’s also ok to be angry for awhile because we have all been there. As we all know when we are hurt and angry we usually show it in the wrong places but it is also sometimes those places that are the safest to show our feelings and yes I believe this is probably one of those places for you. I believe that you are trying everything in your power to do the things you need for your husband as well as your son and i’m sure it is very overwhelming and difficult at times. Just try to make yourself lists and cross off little things and eventually you will see that you are making progress. Unfortunately the prison system is not structured to be compassionate or trusting and I’m sure you can understand why but with time someone will realize there are needs that your husband has and will hopefully help him get what he needs. Feel free to email me or private message me any time. And tell Jacob that he will get thru this and that this big family out here will be here when he finally gets to us.

Take care.

Sherry