Question about symptoms
AnonymousJuly 12, 2006 at 6:54 am
New to this and CONFUSED!
So for months now my hands, feet and face have been pretty numb, even my arms and thighs to a degree, but for the past day or two, I am noticing that when I lightly touch the backs of my hands and the lower part of my face, I can feel it again — its unmistakable! Is this normal? I have had no treatments so far, but I did start taking B12 about a week ago. Doc didn’t laugh at me outright when I told him this, but I SWEAR he rolled his eyes — lol.
AnonymousJuly 13, 2006 at 2:03 am
Hi I am a chronic relapser and it is not unusual for me to have loss of sensation feet and hands over a period of 2-3 weeks and then for the feeling to return. I am not on any treatments. In the past I have had IVIG and then plasmaphoresis when my symptoms persisted and I also had paresis( muscles wakness) – hate it when I cant hold my cup of tea or hair drier:eek:
We are all differnt and what I have learrned each of my “attacks” (CIDPsymptoms) dont always follow a predictable pattern Grr…
I am lucky I have long periods when I have no symptoms at all:D
AnonymousJuly 13, 2006 at 12:44 pm
It is not so weird to take vitamin B12. Low levels can cause neuropathy but I don’t know if there is any connection to CIDP. Earlier this year I had to see an oncologist/hemotologist to rule out any malignancy The first thing he did was to tell me to start taking the highest dosage of B12 I could find even so my blood level was normal. He told me he and his collegues were the ones to set the standards for B12.
A few years ago when my diagnosis was P.N., and not yet CIDP, a neurologist in Thailand prescribed a special B12 made in Japan, very expensive. I think it was supposed to get absorbed better. Forgot the name of it. Only took it for a while.
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